June is Loeys-Dietz syndrome (LDS) awareness month! Throughout June, the LDS community comes together to raise awareness and funds for the Loeys-Dietz Syndrome Foundation (LDSF).
Loeys-Dietz syndrome (LDS) is a genetic disorder that affects the connective tissue in the body. The disorder was first observed and described by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine in 2005. Individuals with LDS exhibit a variety of medical features in the cardiovascular, musculoskeletal, skin and gastrointestinal systems. LDS manifests itself in a number of ways, so no two persons with LDS will have identical medical characteristics. However, aneurysms, arterial tortuosity, hypertelorism, and a bifid uvula are the main characteristics suggestive of a diagnosis of LDS. Please visit www.LoeysDietz.org for a more detailed list of symptoms recorded in individuals diagnosed with Loeys-Dietz syndrome.
A portion of the proceeds for each bracelet sold will go directly to the Loeys-Dietz Syndrome Foundation.
100% of donations will go directly to the Loeys-Dietz Syndrome Foundation.
Caroline Bange is 14 years old. She was diagnosed with LDS at 5 months of age. She contacted Bracelets4Hope to start a fundraiser and raise awareness for LDS. Please support her efforts and show off these beautiful bracelets! A...